Posts
Welcome back everyone
So much to say- I'm not really sure why I've not blogged in so long
Anyway
I'm still here
With crappy ra but this time I'm something really special!
Ooooh yes!
The ra drugs that we thought might help with the ra are helping.
The enbrel I decided to get back onto has worked beautifully
I've got a smart new knee (scary scar now a thing of beauty)
So, what's special about this?
Well
The nice enbrel that's got my crp down to a lushy 27 has got it's marching orders
I've been pursuing the holy grail of ANSWERS to the weird and tricky neuro problems.
Hmmm let's play a game- pick and mix of drs comments...
1)you're just anxious
2) there's no evidence
3) I'm sure it feels nasty to you
4) no one else has this on these drugs
Yes! You guessed it I've had The Lot!
All a lot of rubbish I'm afraid. When I got to see the RIGHT CONSULTANT it turns out I was right and not making it up!
I've just found out that I've got a rare form of an MS condition and related to the anti-tnfs.
So, in the near future I get to be poked about in CAMBRIDGE and LONDON
In the meantime I'm about to get a new right knee
Hazar
I will be the bionic woman
In the meantime I've applied for a canine partner.
So lots to think about there.
I wonder if any of you have had neuro problems on the anti tnfs and been told its nothing and it turns out to be something?
Just to say
Sorry not been blogging wonky followers but I have been having adventures! YES! Once again spent a few weeks on the nhs sweaty plastic covered mattresses and polyester sheets.
Anyway, while I construct my literary masterpieces, what do you think of new background? Its a fresher look than the chilly snow flakes I thought. Are you all "spring cleaning" your blogs? Looking forward to reading your comments.
Anyway, while I construct my literary masterpieces, what do you think of new background? Its a fresher look than the chilly snow flakes I thought. Are you all "spring cleaning" your blogs? Looking forward to reading your comments.
limbering up on the wii fit
Right well that is one new years resolution down the swanny!
Trying to do anything like exercise, I thought I would try the wii fit. The rest of the family have gone out for the morning so I thought I would give it a try.
First, the thing weighs you.
Waiting for the voice saying "one at a time please" I squint sideways at the screen which reveals the tonnage.
Thankfully it didnt direct me to the local weighing bridge, and goes for a gentle programme.
I have a sit down as cannot stand on the thing for long- which throws it into a hissy fit.
I get through the "gentle programme", moving counting and lunging about.
Aching and hurt, I sit down, exhausted. It then reveals this is just setting the damn thing up! HA! It doesn't like the way I stand and that my weight is not only clearly vast it is "unequally balanced".
UNEQUALLY BALANCED?!
If anyone was walking past the WonkyWarrior house they may have heard a few fruity bits of language as I explained in simplistic anglo saxon terms that I had almost killed myself on the damn wii fit and that please would it mind keeping its opinions to itself in future.
What can a wonkywarrior do to get fitter? Perhaps be more imaginative?!
What do you RAers do to get fitter?
Trying to do anything like exercise, I thought I would try the wii fit. The rest of the family have gone out for the morning so I thought I would give it a try.
First, the thing weighs you.
Waiting for the voice saying "one at a time please" I squint sideways at the screen which reveals the tonnage.
Thankfully it didnt direct me to the local weighing bridge, and goes for a gentle programme.
I have a sit down as cannot stand on the thing for long- which throws it into a hissy fit.
I get through the "gentle programme", moving counting and lunging about.
Aching and hurt, I sit down, exhausted. It then reveals this is just setting the damn thing up! HA! It doesn't like the way I stand and that my weight is not only clearly vast it is "unequally balanced".
UNEQUALLY BALANCED?!
If anyone was walking past the WonkyWarrior house they may have heard a few fruity bits of language as I explained in simplistic anglo saxon terms that I had almost killed myself on the damn wii fit and that please would it mind keeping its opinions to itself in future.
What can a wonkywarrior do to get fitter? Perhaps be more imaginative?!
What do you RAers do to get fitter?
I think it might work now
Hi all
Hope you have been enjoying the latest epic from WW....
Sherlock has kindly let me know that the comments bit on the blog isnt working properly. I have fiddled hopefully with the settings and maybe it will work now!
Please have a go at submitting comments again!
Thank you and wishing you all a VERY happy new year.
Hope you have been enjoying the latest epic from WW....
Sherlock has kindly let me know that the comments bit on the blog isnt working properly. I have fiddled hopefully with the settings and maybe it will work now!
Please have a go at submitting comments again!
Thank you and wishing you all a VERY happy new year.
Oh Mum You are SOOOooooo embarassing!
One of the great privileges in my life is to be able to call myself a Mum. I have 3 children, 2 adopted and one birth child and however bohemian our make up we are family. With the kind support of Mr Warrior and the fellow family and friends we achieve much- just not in the way a lot of families do.
One example of this is how our son got a place at college this year.
For a lad renowned for rocky self esteem and wobbliness under pressure, he has excelled and surpassed all expectations and SPOKE POSITIVELY ABOUT HIMSELF and has been OFFERED A PLACE AT college for September 2011.
I have doled out much in the way of kisses and cuddles to him and as long as street cred was at no clear and obvious danger, WonkyLad allowed to be a soppy Mum! (accepting genuine affection is another issue for him- bless!)
There is hope for teen adoptees...!
However, Wonkywarrior needs to report further antics of "Oh gawd Mum You are sooooooooooooo embarrassing"... this is a way of unique contribution that only disabled mums can manage.
Wonkywarrior rang the college prior to Wonkylads interview and checked that the site was accessible and was informed, by cheerful lady, that both buildings were access friendly, linked with ramps suitable for traversing in her wheeled war chariot.
Because of this, flash wheeled chariot was not chosen (because I would have needed a taxi) but the knackered one off Ebay was deployed.
So, with the words "access friendly with ramps-a-plenty" ringing in my ears we set off.
On arrival we discovered that the average gradient of the ramps is 1:3!
Accessed the lunch buffet (just) and on to the interview which included a tour. "Its all access friendly" we are told and so gleefully we head off down a large and very steep hill. At the end of the hill the lecturer says the next bit is up a gravel path. I realise this is going to be impossible to manage. I dont want to embarrass Wonkylad and so I explain I will meet him for his interview with the others at the end of the tour in the right building.
Wonkylad went off on the "tour" and I assure him I will be fine and to concentrate on his session see him in about 30mins in the main building.
Waiving goodbye, I realised too late this large hill we had come down I would have to go up.....
Wheeled chariot whirred hopefully the first 50m... then limped for another 25....chug whirr chug urrrrgh....chug... ugh. whir. ugh! Wonkywarrior welcomed herself with local teenage new mates who were spectating on a bench in the college grounds. I enquired gently how their muscles were and if they were up to shoving me up the hill! New Mates pushed WW up the hill!
These were very pleasant young men and they helped WW with no fuss...
Nearing the top of the slope Wonky realises that what goes up, must come down and stunning sideways slide (complete with variety of students as ballast) with added pirouette flash of genius resulted in rapturous applause by New Mates at bottom of hill. Its a long time since Wonky had a group of 18yr old lads chasing her!
Thankfully wonkylad was no where in sight to spare his blushed so when WW was safely ensconced in the bottom of stair well, thanks to new mate "Ollie" with the lift dead ahead she was feeling very pleased with herself indeed.
Wonkywarrior waved bye bye and thanks. She pressed the UP button on the lift request panel.
Nothing happened.
WW pressed it again.
nothing happened.
WW moved to look up the stair well- no obvious signs of life there... friendly New Mates at bottom of next hill.... ummmmm
Wonkywarriors powers were struggling to think what the hell she was going to do now as Wonkylads interview started in 10 mins.
Whilest pondering this, WW thought she might try the lift button once more and TINK! the lights went out!
"AAAAAgh!" WW yelled.
"Who the hell is that?" came a voice.
"Help!" WW replied.... nice (and very apologetic) lady from the offices above arrived with grovelling sorries and promises of instant estates man visit. Wonkywarrior sat in the stair well area, looking hopefully at the dead elevational device and waited....
Then! Wonkylad hoved into view with fellow hopeful college interviewees over the banister- several flights up.
**STAGED WHISPER FROM WW** "WOnkylad... WOnkylad! I'M STUCK" Wonkylad looks quizically around. Remembering his mums instruction to "concentrate" he ignores the strange voice."WONKYLAD- LOOK DOWN" Wonkylad looks at his left shoe and thinking breifly he has finally gone loopy- he thinks "shoes dont speak" and turns round to glimpse what looks like his Mum...
WW did take a while to get Wonky lad to note her location and the look of stunned horror to see WW in wheeled chariot at the bottom of 4 flights of stairs gave rise to the following comment "Impressive"
WOnkylad, being my wonkylad, then walked off.... oh dear! NOOOOooooooooo
Thankfully he came back once he had twigged this was not a surreal dream.
WW was eventually rescued by nicely spoken and rather tasty chap who she gently flirted with when being unceremoniously shoved up several ramps round 3 sides of the building.
WW wished to thank nice chappy on completion of Wonkylads' very successful interview.
Wonkylad lead WW to the office, warm thanks given and apologies for the lack of functional equipment delivered by slightly red faced staff WW smiled graciously, having not embarrassed son too much and closed the door to note she had knocked off the sign. On retrieval discovered the name of nice chappy....
PRINCIPLE Mr X X.
WW and Wonkylad found the level 5 booster and shot off down the ramp and off into the distance with offer letter in hand.
They wont forget us in a hurry will they?
One example of this is how our son got a place at college this year.
For a lad renowned for rocky self esteem and wobbliness under pressure, he has excelled and surpassed all expectations and SPOKE POSITIVELY ABOUT HIMSELF and has been OFFERED A PLACE AT college for September 2011.
I have doled out much in the way of kisses and cuddles to him and as long as street cred was at no clear and obvious danger, WonkyLad allowed to be a soppy Mum! (accepting genuine affection is another issue for him- bless!)
There is hope for teen adoptees...!
However, Wonkywarrior needs to report further antics of "Oh gawd Mum You are sooooooooooooo embarrassing"... this is a way of unique contribution that only disabled mums can manage.
Wonkywarrior rang the college prior to Wonkylads interview and checked that the site was accessible and was informed, by cheerful lady, that both buildings were access friendly, linked with ramps suitable for traversing in her wheeled war chariot.
Because of this, flash wheeled chariot was not chosen (because I would have needed a taxi) but the knackered one off Ebay was deployed.
So, with the words "access friendly with ramps-a-plenty" ringing in my ears we set off.
On arrival we discovered that the average gradient of the ramps is 1:3!
Accessed the lunch buffet (just) and on to the interview which included a tour. "Its all access friendly" we are told and so gleefully we head off down a large and very steep hill. At the end of the hill the lecturer says the next bit is up a gravel path. I realise this is going to be impossible to manage. I dont want to embarrass Wonkylad and so I explain I will meet him for his interview with the others at the end of the tour in the right building.
Wonkylad went off on the "tour" and I assure him I will be fine and to concentrate on his session see him in about 30mins in the main building.
Waiving goodbye, I realised too late this large hill we had come down I would have to go up.....
Wheeled chariot whirred hopefully the first 50m... then limped for another 25....chug whirr chug urrrrgh....chug... ugh. whir. ugh! Wonkywarrior welcomed herself with local teenage new mates who were spectating on a bench in the college grounds. I enquired gently how their muscles were and if they were up to shoving me up the hill! New Mates pushed WW up the hill!
These were very pleasant young men and they helped WW with no fuss...
Nearing the top of the slope Wonky realises that what goes up, must come down and stunning sideways slide (complete with variety of students as ballast) with added pirouette flash of genius resulted in rapturous applause by New Mates at bottom of hill. Its a long time since Wonky had a group of 18yr old lads chasing her!
Thankfully wonkylad was no where in sight to spare his blushed so when WW was safely ensconced in the bottom of stair well, thanks to new mate "Ollie" with the lift dead ahead she was feeling very pleased with herself indeed.
Wonkywarrior waved bye bye and thanks. She pressed the UP button on the lift request panel.
Nothing happened.
WW pressed it again.
nothing happened.
WW moved to look up the stair well- no obvious signs of life there... friendly New Mates at bottom of next hill.... ummmmm
Wonkywarriors powers were struggling to think what the hell she was going to do now as Wonkylads interview started in 10 mins.
Whilest pondering this, WW thought she might try the lift button once more and TINK! the lights went out!
"AAAAAgh!" WW yelled.
"Who the hell is that?" came a voice.
"Help!" WW replied.... nice (and very apologetic) lady from the offices above arrived with grovelling sorries and promises of instant estates man visit. Wonkywarrior sat in the stair well area, looking hopefully at the dead elevational device and waited....
Then! Wonkylad hoved into view with fellow hopeful college interviewees over the banister- several flights up.
**STAGED WHISPER FROM WW** "WOnkylad... WOnkylad! I'M STUCK" Wonkylad looks quizically around. Remembering his mums instruction to "concentrate" he ignores the strange voice."WONKYLAD- LOOK DOWN" Wonkylad looks at his left shoe and thinking breifly he has finally gone loopy- he thinks "shoes dont speak" and turns round to glimpse what looks like his Mum...
WW did take a while to get Wonky lad to note her location and the look of stunned horror to see WW in wheeled chariot at the bottom of 4 flights of stairs gave rise to the following comment "Impressive"
WOnkylad, being my wonkylad, then walked off.... oh dear! NOOOOooooooooo
Thankfully he came back once he had twigged this was not a surreal dream.
WW was eventually rescued by nicely spoken and rather tasty chap who she gently flirted with when being unceremoniously shoved up several ramps round 3 sides of the building.
WW wished to thank nice chappy on completion of Wonkylads' very successful interview.
Wonkylad lead WW to the office, warm thanks given and apologies for the lack of functional equipment delivered by slightly red faced staff WW smiled graciously, having not embarrassed son too much and closed the door to note she had knocked off the sign. On retrieval discovered the name of nice chappy....
PRINCIPLE Mr X X.
WW and Wonkylad found the level 5 booster and shot off down the ramp and off into the distance with offer letter in hand.
They wont forget us in a hurry will they?
Wonky at Advent
Hello all!
Wonky warrior has managed to have the wonky house decorated in time for Christmas.
According to my youngest child- Barber Kissmouse liffs up the chimlee and brings the beebee cheeses. Not awfully reassuring for the Granddaughter of a church secretary! Theology of 3 year olds is somewhat limited ;-)
Meanwhile the tinsel, tree glittery cards and even my new and lovely nativity set has not sent the RA monster into hiding. He is lurking and currently gnawing my right wrist...OUCH!
Christmas TOTAL WIPEOUT for Wonky Warrior....
in at number 5- Getting a Christmas list together that doesn't include things that are medical like kettle tippers, new walking stick. Consider go faster stripes for my wheelchair necessary for the list and bung it on anyway...
number 4 has to be the Christmas Cards. We like to make ours here and so have enlisted the support of slaves, OOOPS children for making the cards. Still have to write the damn things though, and print off photos for those in far flung places. It takes ages and my hands get puffy!
number 3- easy! This one is working out the Christmas diary. This is where you have a marital dispute over when we have to see Uncle Farts Over dinner and tells inappropriate jokes and visit great Grandma so and so who forgets who we all are anyway! Added complication is that my middle one is away this yr so we need to see her. I have to have some time to recover in between journeys. This yr determined to do somethings that I ACTUALLY WANT TO DO.... Would like to go across countryside on a TRAMPER with the children...I wonder if you can hire them? HA! I can see the headlines now- mad mother terrorises the South Downs....!
Number 2- Has to be opening the advent calendar. How are swollen chunky finger that just wont go, open up those little doors anyhow? You poke at the perforations at one door and wiggle your hand hopefully in a hockus pockus action willing the door open. Perhaps saying OPEN SESAME in true British Panto style would assist..?
But no! You loose it, shake it and mutter dark thoughts at it and all the chocolate falls to the bottom of the damn packet and so there are now no chocolates behind any doors at all!
Number 1- Opening presents. It has to be the number 1! Waited all year for the glorious and long wished for bounty from your loving friends and family and YEP! You guessed it the knuckles have seized and you cant open a single one! More sticky tape on your parcels than you could shake a stick at and done up with tighter security than fort knox.
Hope you enjoyed my little list!
I wonder what your chief annoyances are about the RA at Christmas? IS it the wrapping up or is it the chilly reception in shops when you crash their displays with the powered chair?
Wonky warrior has managed to have the wonky house decorated in time for Christmas.
According to my youngest child- Barber Kissmouse liffs up the chimlee and brings the beebee cheeses. Not awfully reassuring for the Granddaughter of a church secretary! Theology of 3 year olds is somewhat limited ;-)
Meanwhile the tinsel, tree glittery cards and even my new and lovely nativity set has not sent the RA monster into hiding. He is lurking and currently gnawing my right wrist...OUCH!
Christmas TOTAL WIPEOUT for Wonky Warrior....
in at number 5- Getting a Christmas list together that doesn't include things that are medical like kettle tippers, new walking stick. Consider go faster stripes for my wheelchair necessary for the list and bung it on anyway...
number 4 has to be the Christmas Cards. We like to make ours here and so have enlisted the support of slaves, OOOPS children for making the cards. Still have to write the damn things though, and print off photos for those in far flung places. It takes ages and my hands get puffy!
number 3- easy! This one is working out the Christmas diary. This is where you have a marital dispute over when we have to see Uncle Farts Over dinner and tells inappropriate jokes and visit great Grandma so and so who forgets who we all are anyway! Added complication is that my middle one is away this yr so we need to see her. I have to have some time to recover in between journeys. This yr determined to do somethings that I ACTUALLY WANT TO DO.... Would like to go across countryside on a TRAMPER with the children...I wonder if you can hire them? HA! I can see the headlines now- mad mother terrorises the South Downs....!
Number 2- Has to be opening the advent calendar. How are swollen chunky finger that just wont go, open up those little doors anyhow? You poke at the perforations at one door and wiggle your hand hopefully in a hockus pockus action willing the door open. Perhaps saying OPEN SESAME in true British Panto style would assist..?
But no! You loose it, shake it and mutter dark thoughts at it and all the chocolate falls to the bottom of the damn packet and so there are now no chocolates behind any doors at all!
Number 1- Opening presents. It has to be the number 1! Waited all year for the glorious and long wished for bounty from your loving friends and family and YEP! You guessed it the knuckles have seized and you cant open a single one! More sticky tape on your parcels than you could shake a stick at and done up with tighter security than fort knox.
Hope you enjoyed my little list!
I wonder what your chief annoyances are about the RA at Christmas? IS it the wrapping up or is it the chilly reception in shops when you crash their displays with the powered chair?
are you wonkier?
Ode to the wonky
Are you wonky oh lumpy looking knee?
What has become of thee?
Ive a job bending you
just to use the loo.
My fingers have come out in sympathy
knuckles look as 1 that were 3.
Reddening, puffy RA betrayers
looks like a bit of Himalayas.
Ah, most happily I am me inside the wonky
there are glimmers of sparkle in this 'ere body
with steroids, I gained the odd inch
make a comment and quickly find I still pinch!
Poet laureate' job is safe I think!
Please be inspired to write yourself a little poem...! If I can, anyone can!
Are you wonky oh lumpy looking knee?
What has become of thee?
Ive a job bending you
just to use the loo.
My fingers have come out in sympathy
knuckles look as 1 that were 3.
Reddening, puffy RA betrayers
looks like a bit of Himalayas.
Ah, most happily I am me inside the wonky
there are glimmers of sparkle in this 'ere body
with steroids, I gained the odd inch
make a comment and quickly find I still pinch!
Poet laureate' job is safe I think!
Please be inspired to write yourself a little poem...! If I can, anyone can!
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So much to say- I'm not really sure why I've not blogged in so long
Anyway
I'm still here
With crappy ra but this time I'm something really special!
Ooooh yes!
The ra drugs that we thought might help with the ra are helping.
The enbrel I decided to get back onto has worked beautifully
I've got a smart new knee (scary scar now a thing of beauty)
So, what's special about this?
Well
The nice enbrel that's got my crp down to a lushy 27 has got it's marching orders
I've been pursuing the holy grail of ANSWERS to the weird and tricky neuro problems.
Hmmm let's play a game- pick and mix of drs comments...
1)you're just anxious
2) there's no evidence
3) I'm sure it feels nasty to you
4) no one else has this on these drugs
Yes! You guessed it I've had The Lot!
All a lot of rubbish I'm afraid. When I got to see the RIGHT CONSULTANT it turns out I was right and not making it up!
I've just found out that I've got a rare form of an MS condition and related to the anti-tnfs.
So, in the near future I get to be poked about in CAMBRIDGE and LONDON
In the meantime I'm about to get a new right knee
Hazar
I will be the bionic woman
In the meantime I've applied for a canine partner.
So lots to think about there.
I wonder if any of you have had neuro problems on the anti tnfs and been told its nothing and it turns out to be something?
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0
comments
Sorry not been blogging wonky followers but I have been having adventures! YES! Once again spent a few weeks on the nhs sweaty plastic covered mattresses and polyester sheets.
Anyway, while I construct my literary masterpieces, what do you think of new background? Its a fresher look than the chilly snow flakes I thought. Are you all "spring cleaning" your blogs? Looking forward to reading your comments.
Anyway, while I construct my literary masterpieces, what do you think of new background? Its a fresher look than the chilly snow flakes I thought. Are you all "spring cleaning" your blogs? Looking forward to reading your comments.
Category:
3
comments
Right well that is one new years resolution down the swanny!
Trying to do anything like exercise, I thought I would try the wii fit. The rest of the family have gone out for the morning so I thought I would give it a try.
First, the thing weighs you.
Waiting for the voice saying "one at a time please" I squint sideways at the screen which reveals the tonnage.
Thankfully it didnt direct me to the local weighing bridge, and goes for a gentle programme.
I have a sit down as cannot stand on the thing for long- which throws it into a hissy fit.
I get through the "gentle programme", moving counting and lunging about.
Aching and hurt, I sit down, exhausted. It then reveals this is just setting the damn thing up! HA! It doesn't like the way I stand and that my weight is not only clearly vast it is "unequally balanced".
UNEQUALLY BALANCED?!
If anyone was walking past the WonkyWarrior house they may have heard a few fruity bits of language as I explained in simplistic anglo saxon terms that I had almost killed myself on the damn wii fit and that please would it mind keeping its opinions to itself in future.
What can a wonkywarrior do to get fitter? Perhaps be more imaginative?!
What do you RAers do to get fitter?
Trying to do anything like exercise, I thought I would try the wii fit. The rest of the family have gone out for the morning so I thought I would give it a try.
First, the thing weighs you.
Waiting for the voice saying "one at a time please" I squint sideways at the screen which reveals the tonnage.
Thankfully it didnt direct me to the local weighing bridge, and goes for a gentle programme.
I have a sit down as cannot stand on the thing for long- which throws it into a hissy fit.
I get through the "gentle programme", moving counting and lunging about.
Aching and hurt, I sit down, exhausted. It then reveals this is just setting the damn thing up! HA! It doesn't like the way I stand and that my weight is not only clearly vast it is "unequally balanced".
UNEQUALLY BALANCED?!
If anyone was walking past the WonkyWarrior house they may have heard a few fruity bits of language as I explained in simplistic anglo saxon terms that I had almost killed myself on the damn wii fit and that please would it mind keeping its opinions to itself in future.
What can a wonkywarrior do to get fitter? Perhaps be more imaginative?!
What do you RAers do to get fitter?
Category:
3
comments
Hi all
Hope you have been enjoying the latest epic from WW....
Sherlock has kindly let me know that the comments bit on the blog isnt working properly. I have fiddled hopefully with the settings and maybe it will work now!
Please have a go at submitting comments again!
Thank you and wishing you all a VERY happy new year.
Hope you have been enjoying the latest epic from WW....
Sherlock has kindly let me know that the comments bit on the blog isnt working properly. I have fiddled hopefully with the settings and maybe it will work now!
Please have a go at submitting comments again!
Thank you and wishing you all a VERY happy new year.
Category:
1 comments
One of the great privileges in my life is to be able to call myself a Mum. I have 3 children, 2 adopted and one birth child and however bohemian our make up we are family. With the kind support of Mr Warrior and the fellow family and friends we achieve much- just not in the way a lot of families do.
One example of this is how our son got a place at college this year.
For a lad renowned for rocky self esteem and wobbliness under pressure, he has excelled and surpassed all expectations and SPOKE POSITIVELY ABOUT HIMSELF and has been OFFERED A PLACE AT college for September 2011.
I have doled out much in the way of kisses and cuddles to him and as long as street cred was at no clear and obvious danger, WonkyLad allowed to be a soppy Mum! (accepting genuine affection is another issue for him- bless!)
There is hope for teen adoptees...!
However, Wonkywarrior needs to report further antics of "Oh gawd Mum You are sooooooooooooo embarrassing"... this is a way of unique contribution that only disabled mums can manage.
Wonkywarrior rang the college prior to Wonkylads interview and checked that the site was accessible and was informed, by cheerful lady, that both buildings were access friendly, linked with ramps suitable for traversing in her wheeled war chariot.
Because of this, flash wheeled chariot was not chosen (because I would have needed a taxi) but the knackered one off Ebay was deployed.
So, with the words "access friendly with ramps-a-plenty" ringing in my ears we set off.
On arrival we discovered that the average gradient of the ramps is 1:3!
Accessed the lunch buffet (just) and on to the interview which included a tour. "Its all access friendly" we are told and so gleefully we head off down a large and very steep hill. At the end of the hill the lecturer says the next bit is up a gravel path. I realise this is going to be impossible to manage. I dont want to embarrass Wonkylad and so I explain I will meet him for his interview with the others at the end of the tour in the right building.
Wonkylad went off on the "tour" and I assure him I will be fine and to concentrate on his session see him in about 30mins in the main building.
Waiving goodbye, I realised too late this large hill we had come down I would have to go up.....
Wheeled chariot whirred hopefully the first 50m... then limped for another 25....chug whirr chug urrrrgh....chug... ugh. whir. ugh! Wonkywarrior welcomed herself with local teenage new mates who were spectating on a bench in the college grounds. I enquired gently how their muscles were and if they were up to shoving me up the hill! New Mates pushed WW up the hill!
These were very pleasant young men and they helped WW with no fuss...
Nearing the top of the slope Wonky realises that what goes up, must come down and stunning sideways slide (complete with variety of students as ballast) with added pirouette flash of genius resulted in rapturous applause by New Mates at bottom of hill. Its a long time since Wonky had a group of 18yr old lads chasing her!
Thankfully wonkylad was no where in sight to spare his blushed so when WW was safely ensconced in the bottom of stair well, thanks to new mate "Ollie" with the lift dead ahead she was feeling very pleased with herself indeed.
Wonkywarrior waved bye bye and thanks. She pressed the UP button on the lift request panel.
Nothing happened.
WW pressed it again.
nothing happened.
WW moved to look up the stair well- no obvious signs of life there... friendly New Mates at bottom of next hill.... ummmmm
Wonkywarriors powers were struggling to think what the hell she was going to do now as Wonkylads interview started in 10 mins.
Whilest pondering this, WW thought she might try the lift button once more and TINK! the lights went out!
"AAAAAgh!" WW yelled.
"Who the hell is that?" came a voice.
"Help!" WW replied.... nice (and very apologetic) lady from the offices above arrived with grovelling sorries and promises of instant estates man visit. Wonkywarrior sat in the stair well area, looking hopefully at the dead elevational device and waited....
Then! Wonkylad hoved into view with fellow hopeful college interviewees over the banister- several flights up.
**STAGED WHISPER FROM WW** "WOnkylad... WOnkylad! I'M STUCK" Wonkylad looks quizically around. Remembering his mums instruction to "concentrate" he ignores the strange voice."WONKYLAD- LOOK DOWN" Wonkylad looks at his left shoe and thinking breifly he has finally gone loopy- he thinks "shoes dont speak" and turns round to glimpse what looks like his Mum...
WW did take a while to get Wonky lad to note her location and the look of stunned horror to see WW in wheeled chariot at the bottom of 4 flights of stairs gave rise to the following comment "Impressive"
WOnkylad, being my wonkylad, then walked off.... oh dear! NOOOOooooooooo
Thankfully he came back once he had twigged this was not a surreal dream.
WW was eventually rescued by nicely spoken and rather tasty chap who she gently flirted with when being unceremoniously shoved up several ramps round 3 sides of the building.
WW wished to thank nice chappy on completion of Wonkylads' very successful interview.
Wonkylad lead WW to the office, warm thanks given and apologies for the lack of functional equipment delivered by slightly red faced staff WW smiled graciously, having not embarrassed son too much and closed the door to note she had knocked off the sign. On retrieval discovered the name of nice chappy....
PRINCIPLE Mr X X.
WW and Wonkylad found the level 5 booster and shot off down the ramp and off into the distance with offer letter in hand.
They wont forget us in a hurry will they?
One example of this is how our son got a place at college this year.
For a lad renowned for rocky self esteem and wobbliness under pressure, he has excelled and surpassed all expectations and SPOKE POSITIVELY ABOUT HIMSELF and has been OFFERED A PLACE AT college for September 2011.
I have doled out much in the way of kisses and cuddles to him and as long as street cred was at no clear and obvious danger, WonkyLad allowed to be a soppy Mum! (accepting genuine affection is another issue for him- bless!)
There is hope for teen adoptees...!
However, Wonkywarrior needs to report further antics of "Oh gawd Mum You are sooooooooooooo embarrassing"... this is a way of unique contribution that only disabled mums can manage.
Wonkywarrior rang the college prior to Wonkylads interview and checked that the site was accessible and was informed, by cheerful lady, that both buildings were access friendly, linked with ramps suitable for traversing in her wheeled war chariot.
Because of this, flash wheeled chariot was not chosen (because I would have needed a taxi) but the knackered one off Ebay was deployed.
So, with the words "access friendly with ramps-a-plenty" ringing in my ears we set off.
On arrival we discovered that the average gradient of the ramps is 1:3!
Accessed the lunch buffet (just) and on to the interview which included a tour. "Its all access friendly" we are told and so gleefully we head off down a large and very steep hill. At the end of the hill the lecturer says the next bit is up a gravel path. I realise this is going to be impossible to manage. I dont want to embarrass Wonkylad and so I explain I will meet him for his interview with the others at the end of the tour in the right building.
Wonkylad went off on the "tour" and I assure him I will be fine and to concentrate on his session see him in about 30mins in the main building.
Waiving goodbye, I realised too late this large hill we had come down I would have to go up.....
Wheeled chariot whirred hopefully the first 50m... then limped for another 25....chug whirr chug urrrrgh....chug... ugh. whir. ugh! Wonkywarrior welcomed herself with local teenage new mates who were spectating on a bench in the college grounds. I enquired gently how their muscles were and if they were up to shoving me up the hill! New Mates pushed WW up the hill!
These were very pleasant young men and they helped WW with no fuss...
Nearing the top of the slope Wonky realises that what goes up, must come down and stunning sideways slide (complete with variety of students as ballast) with added pirouette flash of genius resulted in rapturous applause by New Mates at bottom of hill. Its a long time since Wonky had a group of 18yr old lads chasing her!
Thankfully wonkylad was no where in sight to spare his blushed so when WW was safely ensconced in the bottom of stair well, thanks to new mate "Ollie" with the lift dead ahead she was feeling very pleased with herself indeed.
Wonkywarrior waved bye bye and thanks. She pressed the UP button on the lift request panel.
Nothing happened.
WW pressed it again.
nothing happened.
WW moved to look up the stair well- no obvious signs of life there... friendly New Mates at bottom of next hill.... ummmmm
Wonkywarriors powers were struggling to think what the hell she was going to do now as Wonkylads interview started in 10 mins.
Whilest pondering this, WW thought she might try the lift button once more and TINK! the lights went out!
"AAAAAgh!" WW yelled.
"Who the hell is that?" came a voice.
"Help!" WW replied.... nice (and very apologetic) lady from the offices above arrived with grovelling sorries and promises of instant estates man visit. Wonkywarrior sat in the stair well area, looking hopefully at the dead elevational device and waited....
Then! Wonkylad hoved into view with fellow hopeful college interviewees over the banister- several flights up.
**STAGED WHISPER FROM WW** "WOnkylad... WOnkylad! I'M STUCK" Wonkylad looks quizically around. Remembering his mums instruction to "concentrate" he ignores the strange voice."WONKYLAD- LOOK DOWN" Wonkylad looks at his left shoe and thinking breifly he has finally gone loopy- he thinks "shoes dont speak" and turns round to glimpse what looks like his Mum...
WW did take a while to get Wonky lad to note her location and the look of stunned horror to see WW in wheeled chariot at the bottom of 4 flights of stairs gave rise to the following comment "Impressive"
WOnkylad, being my wonkylad, then walked off.... oh dear! NOOOOooooooooo
Thankfully he came back once he had twigged this was not a surreal dream.
WW was eventually rescued by nicely spoken and rather tasty chap who she gently flirted with when being unceremoniously shoved up several ramps round 3 sides of the building.
WW wished to thank nice chappy on completion of Wonkylads' very successful interview.
Wonkylad lead WW to the office, warm thanks given and apologies for the lack of functional equipment delivered by slightly red faced staff WW smiled graciously, having not embarrassed son too much and closed the door to note she had knocked off the sign. On retrieval discovered the name of nice chappy....
PRINCIPLE Mr X X.
WW and Wonkylad found the level 5 booster and shot off down the ramp and off into the distance with offer letter in hand.
They wont forget us in a hurry will they?
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Hello all!
Wonky warrior has managed to have the wonky house decorated in time for Christmas.
According to my youngest child- Barber Kissmouse liffs up the chimlee and brings the beebee cheeses. Not awfully reassuring for the Granddaughter of a church secretary! Theology of 3 year olds is somewhat limited ;-)
Meanwhile the tinsel, tree glittery cards and even my new and lovely nativity set has not sent the RA monster into hiding. He is lurking and currently gnawing my right wrist...OUCH!
Christmas TOTAL WIPEOUT for Wonky Warrior....
in at number 5- Getting a Christmas list together that doesn't include things that are medical like kettle tippers, new walking stick. Consider go faster stripes for my wheelchair necessary for the list and bung it on anyway...
number 4 has to be the Christmas Cards. We like to make ours here and so have enlisted the support of slaves, OOOPS children for making the cards. Still have to write the damn things though, and print off photos for those in far flung places. It takes ages and my hands get puffy!
number 3- easy! This one is working out the Christmas diary. This is where you have a marital dispute over when we have to see Uncle Farts Over dinner and tells inappropriate jokes and visit great Grandma so and so who forgets who we all are anyway! Added complication is that my middle one is away this yr so we need to see her. I have to have some time to recover in between journeys. This yr determined to do somethings that I ACTUALLY WANT TO DO.... Would like to go across countryside on a TRAMPER with the children...I wonder if you can hire them? HA! I can see the headlines now- mad mother terrorises the South Downs....!
Number 2- Has to be opening the advent calendar. How are swollen chunky finger that just wont go, open up those little doors anyhow? You poke at the perforations at one door and wiggle your hand hopefully in a hockus pockus action willing the door open. Perhaps saying OPEN SESAME in true British Panto style would assist..?
But no! You loose it, shake it and mutter dark thoughts at it and all the chocolate falls to the bottom of the damn packet and so there are now no chocolates behind any doors at all!
Number 1- Opening presents. It has to be the number 1! Waited all year for the glorious and long wished for bounty from your loving friends and family and YEP! You guessed it the knuckles have seized and you cant open a single one! More sticky tape on your parcels than you could shake a stick at and done up with tighter security than fort knox.
Hope you enjoyed my little list!
I wonder what your chief annoyances are about the RA at Christmas? IS it the wrapping up or is it the chilly reception in shops when you crash their displays with the powered chair?
Wonky warrior has managed to have the wonky house decorated in time for Christmas.
According to my youngest child- Barber Kissmouse liffs up the chimlee and brings the beebee cheeses. Not awfully reassuring for the Granddaughter of a church secretary! Theology of 3 year olds is somewhat limited ;-)
Meanwhile the tinsel, tree glittery cards and even my new and lovely nativity set has not sent the RA monster into hiding. He is lurking and currently gnawing my right wrist...OUCH!
Christmas TOTAL WIPEOUT for Wonky Warrior....
in at number 5- Getting a Christmas list together that doesn't include things that are medical like kettle tippers, new walking stick. Consider go faster stripes for my wheelchair necessary for the list and bung it on anyway...
number 4 has to be the Christmas Cards. We like to make ours here and so have enlisted the support of slaves, OOOPS children for making the cards. Still have to write the damn things though, and print off photos for those in far flung places. It takes ages and my hands get puffy!
number 3- easy! This one is working out the Christmas diary. This is where you have a marital dispute over when we have to see Uncle Farts Over dinner and tells inappropriate jokes and visit great Grandma so and so who forgets who we all are anyway! Added complication is that my middle one is away this yr so we need to see her. I have to have some time to recover in between journeys. This yr determined to do somethings that I ACTUALLY WANT TO DO.... Would like to go across countryside on a TRAMPER with the children...I wonder if you can hire them? HA! I can see the headlines now- mad mother terrorises the South Downs....!
Number 2- Has to be opening the advent calendar. How are swollen chunky finger that just wont go, open up those little doors anyhow? You poke at the perforations at one door and wiggle your hand hopefully in a hockus pockus action willing the door open. Perhaps saying OPEN SESAME in true British Panto style would assist..?
But no! You loose it, shake it and mutter dark thoughts at it and all the chocolate falls to the bottom of the damn packet and so there are now no chocolates behind any doors at all!
Number 1- Opening presents. It has to be the number 1! Waited all year for the glorious and long wished for bounty from your loving friends and family and YEP! You guessed it the knuckles have seized and you cant open a single one! More sticky tape on your parcels than you could shake a stick at and done up with tighter security than fort knox.
Hope you enjoyed my little list!
I wonder what your chief annoyances are about the RA at Christmas? IS it the wrapping up or is it the chilly reception in shops when you crash their displays with the powered chair?
Ode to the wonky
Are you wonky oh lumpy looking knee?
What has become of thee?
Ive a job bending you
just to use the loo.
My fingers have come out in sympathy
knuckles look as 1 that were 3.
Reddening, puffy RA betrayers
looks like a bit of Himalayas.
Ah, most happily I am me inside the wonky
there are glimmers of sparkle in this 'ere body
with steroids, I gained the odd inch
make a comment and quickly find I still pinch!
Poet laureate' job is safe I think!
Please be inspired to write yourself a little poem...! If I can, anyone can!
Are you wonky oh lumpy looking knee?
What has become of thee?
Ive a job bending you
just to use the loo.
My fingers have come out in sympathy
knuckles look as 1 that were 3.
Reddening, puffy RA betrayers
looks like a bit of Himalayas.
Ah, most happily I am me inside the wonky
there are glimmers of sparkle in this 'ere body
with steroids, I gained the odd inch
make a comment and quickly find I still pinch!
Poet laureate' job is safe I think!
Please be inspired to write yourself a little poem...! If I can, anyone can!