Welcome back everyone

So much to say- I'm not really sure why I've not blogged in so long Anyway I'm still here With crappy ra but this time I'm something really special! Ooooh yes! The ra drugs that we thought might help with the ra are helping. The enbrel I decided to get back onto has worked beautifully I've got a smart new knee (scary scar now a thing of beauty) So, what's special about this? Well The nice enbrel that's got my crp down to a lushy 27 has got it's marching orders I've been pursuing the holy grail of ANSWERS to the weird and tricky neuro problems. Hmmm let's play a game- pick and mix of drs comments... 1)you're just anxious 2) there's no evidence 3) I'm sure it feels nasty to you 4) no one else has this on these drugs Yes! You guessed it I've had The Lot! All a lot of rubbish I'm afraid. When I got to see the RIGHT CONSULTANT it turns out I was right and not making it up! I've just found out that I've got a rare form of an MS condition and related to the anti-tnfs. So, in the near future I get to be poked about in CAMBRIDGE and LONDON In the meantime I'm about to get a new right knee Hazar I will be the bionic woman In the meantime I've applied for a canine partner. So lots to think about there. I wonder if any of you have had neuro problems on the anti tnfs and been told its nothing and it turns out to be something?

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Welcome back everyone

So much to say- I'm not really sure why I've not blogged in so long Anyway I'm still here With crappy ra but this time I'm something really special! Ooooh yes! The ra drugs that we thought might help with the ra are helping. The enbrel I decided to get back onto has worked beautifully I've got a smart new knee (scary scar now a thing of beauty) So, what's special about this? Well The nice enbrel that's got my crp down to a lushy 27 has got it's marching orders I've been pursuing the holy grail of ANSWERS to the weird and tricky neuro problems. Hmmm let's play a game- pick and mix of drs comments... 1)you're just anxious 2) there's no evidence 3) I'm sure it feels nasty to you 4) no one else has this on these drugs Yes! You guessed it I've had The Lot! All a lot of rubbish I'm afraid. When I got to see the RIGHT CONSULTANT it turns out I was right and not making it up! I've just found out that I've got a rare form of an MS condition and related to the anti-tnfs. So, in the near future I get to be poked about in CAMBRIDGE and LONDON In the meantime I'm about to get a new right knee Hazar I will be the bionic woman In the meantime I've applied for a canine partner. So lots to think about there. I wonder if any of you have had neuro problems on the anti tnfs and been told its nothing and it turns out to be something?
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