Decision made but I nearly wet myself!

I have decided to go for the Cimzia. Reasons are no 1 I am having it in here and if I have a reaction they know what to do. no 2 I still might have to have a bone marrow transplant one day but the risks are so high, it is a long process with no guarantees of "bringing me back" if things go wrong.

I tell a delighted Dr Fly by Night who gets himself happily off to the Dr Big Cheif. I can hear him on the phone in the corridor "Oh yes, just a little convincing and flattering and she decided to have the Cimzia"

At this point my nurse makes a funny coughing noise, sure it sounded like "knob head".... ;-)

But just as I am writing my text to say to all to pray like mad as I am having the drug the dr comes in and wants to stab with the Cimzia there and then.

Thank God, the Nurse was there and stopped him and ushered a very huffy dr out of the room and after a few minutes Nurse returned and explained they were getting "a few things ready"

Feeling like I have a reprieve before the firing squad I get a wash started with my other nurse and explain that I am wetting myself about this but am hopeful it goes ok.

The curtains round my bed go back and I see the crash trolley has been wheeled in and the main Nurse is coming to put a canula in. They decide to give me piriton to settle in first.

I come over all tearful and ring my Dad to say they are giving it to me now, they really are! I ring and leave a message for Richard to tell the children and everyone that I love them and I'm so sorry to have to put them all through this again.

The nurse is back, he cannot look at my face as I have tears streaking down my hot red cheeks and I am trembling. I look down and see the poor man is having a job holding himself together.

He takes the lid off the Cimzia needle, swabs my tummy and in it goes.

PLEASE GOD PLEASE GOD PLEASE JESUS HELP ME PLEASE I beg under my breath.

I feel a slight feeling in my throat and for a moment I think- oh no, the tingling will come and then it all goes black but it doesn't.

I feel woozy and funny and lie down but no tightness of throat, it just feels sore thats all. I decide I can "do sore".

Dr Fly-by-night swings by and shows his straightened holywood tinted gnashers and says "Its because I was here, the patient, she was calm this time".

I hear a faint clattering as Dr Fly-By-Night seemingly has "tripped up" over the nurses blood pressure trolley which was accidently suddenly in his path......!

I ring my Dad who cries inbetween blubs he tells me Mum is coming but I have been a Brave Brave girl. I feel about 6 after falling in some stinging nettles and Dad dobbing me with a doc leaf.

Should we have RA Bravery awards do you think?

3 comments:

kris said...

We should indeed! And you get a whole trophy case worth of those awards.

Lene said...

Absolutely. Thee should be categories like Daily Courage (for getting out of bed), Facing Idiot Medical Staff (I think you're a shoe-in for that one) and Leaping off the Cliff with Nothing but Hope for a Parachute (pretty sure you derserve that one, too).

Love your writing!

Jblacey said...

Thank you for your great support. I am really enjoying keeping the blog.

I am a dab hand at dealing with Doctors from Twit division.. ;-) there is always one as they say- but why do they always get assigned to me?!

Decision made but I nearly wet myself!

I have decided to go for the Cimzia. Reasons are no 1 I am having it in here and if I have a reaction they know what to do. no 2 I still might have to have a bone marrow transplant one day but the risks are so high, it is a long process with no guarantees of "bringing me back" if things go wrong.

I tell a delighted Dr Fly by Night who gets himself happily off to the Dr Big Cheif. I can hear him on the phone in the corridor "Oh yes, just a little convincing and flattering and she decided to have the Cimzia"

At this point my nurse makes a funny coughing noise, sure it sounded like "knob head".... ;-)

But just as I am writing my text to say to all to pray like mad as I am having the drug the dr comes in and wants to stab with the Cimzia there and then.

Thank God, the Nurse was there and stopped him and ushered a very huffy dr out of the room and after a few minutes Nurse returned and explained they were getting "a few things ready"

Feeling like I have a reprieve before the firing squad I get a wash started with my other nurse and explain that I am wetting myself about this but am hopeful it goes ok.

The curtains round my bed go back and I see the crash trolley has been wheeled in and the main Nurse is coming to put a canula in. They decide to give me piriton to settle in first.

I come over all tearful and ring my Dad to say they are giving it to me now, they really are! I ring and leave a message for Richard to tell the children and everyone that I love them and I'm so sorry to have to put them all through this again.

The nurse is back, he cannot look at my face as I have tears streaking down my hot red cheeks and I am trembling. I look down and see the poor man is having a job holding himself together.

He takes the lid off the Cimzia needle, swabs my tummy and in it goes.

PLEASE GOD PLEASE GOD PLEASE JESUS HELP ME PLEASE I beg under my breath.

I feel a slight feeling in my throat and for a moment I think- oh no, the tingling will come and then it all goes black but it doesn't.

I feel woozy and funny and lie down but no tightness of throat, it just feels sore thats all. I decide I can "do sore".

Dr Fly-by-night swings by and shows his straightened holywood tinted gnashers and says "Its because I was here, the patient, she was calm this time".

I hear a faint clattering as Dr Fly-By-Night seemingly has "tripped up" over the nurses blood pressure trolley which was accidently suddenly in his path......!

I ring my Dad who cries inbetween blubs he tells me Mum is coming but I have been a Brave Brave girl. I feel about 6 after falling in some stinging nettles and Dad dobbing me with a doc leaf.

Should we have RA Bravery awards do you think?
Category: 3 comments

3 comments:

kris said...

We should indeed! And you get a whole trophy case worth of those awards.

Lene said...

Absolutely. Thee should be categories like Daily Courage (for getting out of bed), Facing Idiot Medical Staff (I think you're a shoe-in for that one) and Leaping off the Cliff with Nothing but Hope for a Parachute (pretty sure you derserve that one, too).

Love your writing!

Jblacey said...

Thank you for your great support. I am really enjoying keeping the blog.

I am a dab hand at dealing with Doctors from Twit division.. ;-) there is always one as they say- but why do they always get assigned to me?!